Treatment
Epidermolysis bullosa (EB)
Currently, there’s no cure for EB, so treatment focuses on symptom management and prevention of complications. This includes protecting the skin, promoting healing, and addressing specific symptoms. Multidisciplinary care involving various medical specialists is crucial. Treatment may involve medications, wound care, and surgical interventions. Psychological support for patients and families is also recommended, especially for severe subtypes.
Prevention and Support
Preventive measures include avoiding activities that induce friction, maintaining a cool environment, and using specialized clothing and wound dressings. Support groups and resources like DEBRA International and EB-Clinet provide further assistance and information for individuals with EB and their caregivers.
In summary, EB is a complex condition requiring comprehensive care and management to improve quality of life for affected individuals.
